The first new FDA approved drug for ALS in 22 years!Read More
Walk to Defeat ALS
More than 180 walks take place in communities across the country February through November. Walk to Defeat ALS draws people of all ages and athletic abilities coming together to honor a loved one with the disease, to remember those who’ve passed and to show their support for the cause.Find A Walk Near You
Visit our Merchandise Page!
#ChallengeALS wristbands are now available for purchase!Get Yours Now
Celebrate a Loved One with ALS
Pay tribute to a friend or loved one affected by ALS. Each tribute is a personalized online fund designed to honor or memorialize someone special. Your Community of Hope fund creates a lasting legacy.Learn More
The ALS Association is deeply committed to bringing the voice of people living with ALS to the therapy development process in a rigorous and effective manner. Therefore, in an effort to include your perspective to help guide the development of new drugs and services for ALS, we are conducting a survey of people with ALS and caregivers/families. This initiative, titled IMPACT-ALS (Investigating and Measuring Patient And Caregiver Trends about ALS), is a collaboration with three industry partners (Biogen, Ionis, and Cytokinetics) and several clinicians.
The survey is intended to identify the burden of ALS and concerns during the progression of the disease, preferences for treatment, and any differences in perceptions between patients and caregivers. Results from this survey are planned to be published in in peer-reviewed journals and presented through other channels, such as the international ALS meeting held in Boston this December. Results will also be accessible to all participants.
We kindly ask that you please take the time to fill out this important survey at the link below.
SURVEY DUE NOVEMBER 1, 2017
Click here for the survey: www.IMPACTALS.com
√ The survey should take approximately 35-minutes to complete
√ All open-ended questions are optional
√ Responses are completely anonymous
If you have any difficulty while completing the survey please call 415.262.5206 or email Alexis.Fedorchak@Apothecom.com
Thank you for your participation in this important initiative!
Whether you’re newly diagnosed, navigating your journey with the disease, caring for a person with ALS, or researching the cure, there are resources to support you.
Let us help you and your family cope with the day-to-day challenges of living with ALS.For People with ALS
Learn about our grant program, upcoming scientific meetings, and opportunities to collaborate.For Researchers
Caring for someone with ALS is hard work. We offer resources and support to help you.For Caregivers
Sign up to receive the latest news in ALS and learn how you can continue making a difference in the search to treat and cure this disease.
Your gift will help The ALS Association support research to find a cure for ALS and provide much-needed services to patients and their families. By becoming a part of The ALS Association family and making your gift today, you will help sustain hope in thousands of people affected by ALS.